Sunday, July 27, 2008
Wednesday, July 23, 2008
our independent two-year-old
Taking care of Mommy
Sunday, July 20, 2008
A love affair with underwear.
week one... almost
Louise has been amazing keeping everything running smoothly. She works harder then anyone I know, and doesn’t complain about any of it. We are heading to Naples tomorrow and will be there for a week, we’ll come back in time for my second chemo treatment on Tuesday.
Monday, July 14, 2008
Enough about me...
Grant among other things has learned to put his binky in his mouth and can even turn it to face the right way when it’s up side down, we are so proud. He is also sporting a skippity crawl, he gets so excited to get places that his legs move faster then his hands and it’s not uncommon to find him doing a face plant in the midst of his excitement. He has started pulling himself up on furniture and is so pleased with himself when he dumps water or food all over his head in his highchair.
Although Dallin still adores Katelyn’s princess things, especially the high heels and sunglasses he has also discovered the joy of football. He hasn’t yet mastered the skill of standing back to throw the ball, rather he prefers to get as close as he can before he hurls the ball full force into my hands, which are generally blocking my face so I don’t end up with a bloody nose. We are working on having him at least announce that he is throwing the ball before he chucks the ball at us. Katelyn barely escaped a black eye when he decided to throw the ball to her unexpectedly.
Katelyn has decided to let her tummy dictate her daily decisions. She is constantly announcing that her “tummy would like to watch a movie” or play the computer or that her tummy doesn’t want to go to bed. So far Grandma has been the only one with enough heart to correct her and explain that tummies tell us when we are hungry and minds tell us when we want to do things. I’m pretty sure Katelyn thinks grandma is crazy.
Cameron has been busy with school and is now starting to apply for residencies. He has yet to decide what exactly he wants to be when he grows up but it looks like he has narrowed it down to Pathology or radiology. The only problem with those choices is no one is exactly sure what a pathologist or radiologist does. So that leaves me with a lot of explaining to do when I talk to people about it. If he choose something like family medicine no one would look at me blankly and say uh-huh when I tell them my husband is a family doctor. He has been able to get a lot of time off to accompany me to doctor’s appointments and wait for me during surgery. He is an amazing guy and I am so blessed to have him.
Thank you!
I have always been on the giving end of service and other things like that, it's a humbling experience to be on the receiving end. I'm not sure I can express my gratitude for all the sacrifices made for me. All I can say is Thank you.
Saturday, July 12, 2008
A new look
On Thursday I went to the aquarium with some friends. I told Jill that I was planning to get my hair cut before it all fell out. she said that she would go home and see if she had any coupons, she called me an hour later and said she had scheduled an appointment for me on Saturday at 11am at this place where another friend goes, and the best part was they would do it for free, she explained my story and they agreed to donate a haircut. isn't that fantastic.
so I went and Jacob cut my hair, he did a fabulous job. Aren't friends great!
The kids were supposed to lay down for a nap. and they were doing just fine until I came home with a new haircut, then they wanted to see me, so I laid down with them and Cameron set the timer and said that if they were still awake when the timer went off they could get out of bed. they were almost asleep when the timer went off, I didn't hear it because it was in the kitchen but Katelyn popped up and said "time a get up" Dallin popped up and Cameron came into the room saying he had cookie but only for people who were sleeping, so we all laid back down and starting snoring... he fell for it.
Wednesday, July 09, 2008
the 4th of July Parade
Katelyn loves this red dress, she would wear it everyday if she could.
Tuesday, July 08, 2008
More Changes.
Just Kidding...
The bad news is I will still have surgery it’s just minor surgery so that I can get a “port” placed just below my right collarbone, for easy vessel access and I will start Chemo in a week. The doctors are hoping to shrink the tumor with Chemo and then have better chances of getting clear margins without cutting into muscle when I do have surgery sometime in October.
I have been way more anxious about Chemo then surgery so I’m a bit frazzled by the idea of going through it that much sooner. Plus I had a tentative plan for how I was going to manage this, and now that’s out the window.
So here’s the run down. They will start with Adriamycin and Rubex on July 15th and I will get 4 treatments one every 2 weeks. Usually they wait three weeks, but they don’t want to mess around and I’m young and energetic so they aren’t giving me as much recovery time in between treatments. I will feel very tired between days 3 and 5 after treatment, on Days 5-10 I will be most susceptible to infection and I might feel ok on days 11-14. I will lose my hair during the second treatment. So I have about 3 more weeks of shaving my legs and applying mascara. My hair will come back after the treatments are over. After that I will get Cytoxan once a week for 4 weeks.
So if I don’t get sick and have to be hospitalized or delay treatments because my blood counts are too low I should be done in 12 weeks. After that I will have surgery and then Radiation. In addition to Chemo I will be on a steroid that will help my body accept the Chemo, unfortunately it will also make my body ravishingly hungry. The nurse expects that I’ll gain 10 pounds.
During the weeks of Chemo I have been forbidden to do dishes, clean bathrooms, change diapers or eat fruits and vegetables that can’t be peeled. I’m also not allowed to go anywhere public. Except for three days before my next treatment… I think. This should be interesting considering technically I have 2 in diapers, although Dallin likes to take care of his himself…if only that weren’t messier. Right now cleaning the kitchen and bathrooms is almost a daily occurrence. The nurse didn’t seem too concerned with me having people over or going over to other peoples houses, as long as everyone involved is healthy.
Most days I’m able to stay pretty positive about this whole ordeal but I do have my low days. Yesterday was one of those days. Cameron had an evening meeting so I made the kids peanut butter sandwiches for dinner and then spent the evening typing on the computer and eating a candy bar. Maybe I won’t have to go through Chemo to gain 10 pounds.
Wednesday, July 02, 2008
The Bone Scan
The nurse finished getting her equipment lined up, approached me with a needle and informed me in a nonchalant way that she would be injecting me with radio active dye that will run through my system and in three hours I was to report back to get the bone scan… I’m not sure how a person’s suppose to feel receiving that sort of information but it was a little disconcerting for me. I had fleeting thoughts of finding a dark room to see if I would glow.
The nurse was surprised as she looked at the nook of my elbow and noticed the massive bruise left there by my last encounter with a needle and exclaimed “I’m sorry. I will do my best not to do that to you.” I told her I would appreciate that.
True to her word I walked away without farther injury. I spent the time between appointments visiting with friends at a park. When I returned for the bone scan the nurse had me lay on a bed that she rolled under a big machine she had a computer type monitor thing that she adjusted so I could watch as it did the scan. It was cool, I could actually see the flow of the dye going through my body as the machine worked taking images of specific areas of my body. The whole process was actually quite relaxing,
I started reflecting on everything that has happened the last few days. The worse news came on Monday when we met with a fertility doctor to discuss our options for having children after Chemo. I know it sounds crazy to some people that we would even be considering having more children but I love being a mom and I would love to have more children. We found out that there is a thirty percent chance I won’t be able to have children after Chemo. And even if we are able to have children we will have to wait 5 years. Which will leave a 6 year gap in our family. Which I guess is fine, I just hadn’t planned it that way back when I use to think I had so much control of my life.
The scan went well, I made it hope safe and the kids are still hard to put to bed.